Full of faith and hope

My dear friend Sharon, who was always full of faith and hope, passed away March 4, 2011. Throughout the past 2.5 years she never lost her faith and hope that she would one day be well again. I wish sometimes that I could have bottled her faith and hope as I dealt with my own medical crisis and dealt with my adult son being lost to us. Many, many times in our conversations it was she who would end up consoling me when I was the one to call and check on her. I only hope that she knew how much her friendship meant to me.

I pray for her loved ones left behind for some peace in this time of their life. I hope and pray that one day there will be a cure for leukemia. I hope and pray that one day there will also be a cure for pseudotumor cerebri, even though, at this time I am reminded that while I fight a headache and vision problems every day my friend faught so much harder every day. God bless her for showing me how to fight and for showing me how not to lose faith and hope.

Prayers for peace and energy

For my dear friend Sharon. I last posted in December for her and unfortunately things have not gone very well since then. Sharon has gone through a new chemo that didnt work and now 14 blood transfusions. Unfortunately the transfusions are no longer working. My dear friend and her family have had to make some hard decisions this past week. I cannot begin to imagine.

So for my friend Sharon I pray for peace at this time of tough decisions. Please let God be with her in those moments and let her feel his presence as she is going through the next part of her leukemia journey. I pray that she has energy to get through each day.

For her family I pray for peace as well. Let them feel God around them as they try so very hard to support their mother and sister. Let them also feel that they are not alone. I pray for energy for them as well. Energy to take care of Sharon physically, emotionally and mentally. For this is not only hard for Sharon but the family as well. Give them strength to reach out to others for assistance when they need a moment to pray, cry or just feel.

With love to all of them.

My friend Sharon

This prayer goes out for a good friend, Sharon. She has been battling leukimia for a few years now. She has endured many rounds of chemo, hospital stays, transfusion and set backs. Today I received an update on my wonderful friend and she has to go into the hospital for a transfusion. The current therapy is not proving strong enough.

My prayer is that her hospital stay be short, the nurses and doctors be wise and compassionate. I pray that she gets home in time to spend the holiday with her grown children and little grandchildren. I pray that God watches over her and her body and helps her body to fight once again against this disease.

Sharon has always been a light for me and reminded me that no matter what to keep my faith, even when she was very ill, she prayed for me and my son. She is such a strong woman, mother and friend. I am so blessed to have her in my life.

Please keep my friend in your prayers as well.

So many

Pray for Sherry on DS group...dealing with a lot medically and emotionally.

Pray overall for all those on DS group, it sounds like this week has been a tough week for everyone. A lot of us getting frustrated and discouraged by PTC, doctors and treatments that are just as bad as the disease.

Please God give us all some relief this holiday so that we may get all the things done that we have to do do make the holiday ejoyable for our family and to remember that it doesnt have to be perfect, that it is about spending time with family and friends. Please God give us patience with ourselves, our body and our loved ones when we are not feeling well.

Amen

Prayer for today

Well, my Saturday morning headache turned into so much more. I ended up in the ER Sunday night when I my husband got home from work. My right eye was swollen and red. He was concerned and suggested I go to the ER that way they could just do the spinal tap and give me some relief. Now when my husband suggest that I go to the ER I know things are not looking well.

So we went and they got me right in and seen by a PA. That should have been my first halt right there, I should have asked for a full blown DR. So they move me to another room where they attempted to do a spinal tap, then the PA gets a DR, the DR tries. Between the two of them they stuck me twice and no fluid. I said that is enough I cannot take anymore of this. So they admit me so that I can have a fluro-tap done in the AM. The only benefit I saw Sunday was in the form of Dilaudid IV. So that meant that I got two hours sleep. Then came the fluro-tap, again two sticks at least this time they got fluid.

Now it is Wednesday and I am suffering the side effects of the LP....I cannot sit or stand without excrutiating pain. So after many folks advice I am flat on my back and drinking some caffiene. I am hoping this clears up soon. So to add to staying flat and caffiene, I am also posting this prayer.

Please God, help me to cope with this pain and setback today. Give me the strength not to cry even though I really, really want to. Give my husband patience to deal with me today (even though he already has the patience of Jobe). Give me the patience I need to stay in one spot today.

Pray also for Tracy from DS that her shunt tie off go well.

For some relief

I woke up today at 6am with one of the worst headaches and blurred vision in my right eye. I have tried some Aleve and Vicodin and I am not finding any relief from this pain. I pray for some relief not only for myself for the others on my discussion board that are dealing with the same pain, shunts that arent working and side effects from medication.

Please God bring us all some relief!

New neurologist

Today I am praying for guidance in meeting with a new neurologist. Guidance to ask the right questions on my part. Guidance for the doctor on how to best treat ME with this condition. I am praying for hope not to hear the words "if you lost weight PTC would get better or go away". I am so tired of doctors telling me that losing weight is the only solution to this. I have lost weight since this started and the headaches are still here.

Pray for patience to give this doctor a chance to prove himself to me. I feel like I am interviewing him for the job of MY neurologist.

My long term prayer would be that they find a cure for this condition.